癌症确诊后,家庭成员能否在健康生活方式方面做出一些改变?(疾病获益感???) | 护理SCI文献解读

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今天继续给大家分享护理SCI文献:源自《European Journal of Oncology Nursing》(IF=1.876)

McKeague B, Maguire R. “The effects of cancer on a family are way beyond the person who's had it”: The experience and effect of a familial cancer diagnosis on the health behaviours of family members[J]. European Journal of Oncology Nursing, 2021,51:101905.

“癌症确诊”对家庭成员的影响超过了患者本人:“癌症确诊”对家庭成员健康行为的经历和影响。

推荐理由:

本研究主要是从病人家庭成员角度出发,探讨“癌症确诊”对家庭成员健康行为的经历和影响。(这有点类似于“主要照顾者的疾病获益感”,只不过本研究关注更多是健康生活方式或行为的问题)

Abstract摘要

Purpose People who are first-degree relatives of cancer patients are at an increased risk of developing cancer themselves. Despite this, relatives of cancer patients do not always make beneficial changes to their health behaviours. This study aimed to answer the following questions: (1) do the health behaviours of people who are first-degree relatives of cancer survivors change following cancer diagnosis, and if so, how, and why, (2) what motivations/barriers exist for first-degree relatives when seeking to engage with health promoting behaviours, and (3) what do first-degree relatives believe healthcare organisations can do to improve uptake of healthy lifestyle changes.

研究目的:癌症病人的直系亲属的患病风险也很高。尽管如此,癌症患者的亲属并不一定能够对他们的健康行为做出有益的改变。本研究旨在回答以下3个问题:①癌症病人的直系亲属在患者确诊后会对自己的健康行为做出改变吗?如果会,解释如何做出改变?以及为什么做出改变?②癌症病人的直系亲属在改变其健康行为时的阻碍与促进因素是什么?③癌症病人的直系亲属在改变其健康行为时,其认为医疗保健机构应该提供哪些帮助?

Method Nine biological first-degree relatives of cancer survivors living in Ireland (6 children, 2 siblings, 1 parent) participated in semi-structured interviews which were later thematically analysed.

研究方法:对9名癌症病人的直系亲属(包括6名孩子、2名兄弟姐妹、1名父母)进行了半结构式访谈;应用主题分析法进行分析。

Results Findings revealed four superordinate themes: Being Conscious/Aware, Limited Lifestyle Changes, Psychosocial Consequences of Experience, and Unmet Needs, with each of these themes having two to three subordinate themes. Patient and public involvement emphasised Unmet Needs, including needs for information and family support, as the theme that was most reflective of participants’ lived experience.

研究结果:共得到4个主题:意识改变(如开始寻求体检)、生活方式改变有限(访谈中只有2名受访者决定做出全部的改变,其他的则表述改变的有限)、社会心理的变化、需求及支持(包括信息需求和医疗机构的支持等)。每个主题下有2-3个二级主题。病人和家属都强调未满足的需求,包括对信息和家庭支持的需求,这最能反映受访者的生活经历。

Conclusions Results suggest that while family members tend not to change their lifestyle behaviours following cancer diagnosis, they do seem to make changes to their medical behaviours. Additionally, they can be negatively impacted by the experience in several other ways. Identifying means of support will allow relatives to cope better post diagnosis.

研究结论:本研究表明,癌症病人的直系亲属的健康行为 确实会发生改变,但改变有限。很明显,癌症病人的直系亲属在如何改变健康行为方面,以及在心理和社会层面,都面临许多困难。这些发现提示,医疗机构应该关注癌症病人的直系亲属对他们缺乏支持和信息的需求,特别是针对那些自身患癌症风险较高的人。

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